Cam and his Bruce the Moose cookie
On Sunday night we made the difficult decision to have Rick return home to our other children..we felt that Corey needed one of us and that Caelyn was becoming ill and in need of a doctor's visit. It was a hard moment for me to let Rick return and to trust God fully being three hours from home, with no vehicle and not really sure what would happen from day to day nor how long this week might be.
God never leaves us alone even when we have no one..He is there. I can't begin to recount all the ways in the past two days that He has provided. After many days of difficult blood draws, due to a new antibiotic that requires frequent monitoring of blood levels, the IV team put in a special IV for blood draws that makes it painless for Cameron (so thankful as tonight we need a 4am blood draw and they can do it while he sleeps!). God sent someone with an ipad to help Cam play Angry Birds (and even Mom got a bit addicted in that 5 minute time frame) while they worked on him and I had no other hands to support but God was there. He gave us an amazing night time nurse who would be with us for three straight nights..providing support and continuity and whose main goal seemed to be to watch over the IVs closely so all of the night time medications would not wake us. We have had the best sleep these nights since Daddy went home. Cameron became stronger almost overnight and decided he could walk to the playroom instead of using a wheelchair (which might have been impossible for me to navigate with an IV pole by myself). God sent my St Louis new friend to come with toothpaste at just the time when I was in the downstairs playroom and needing an extra hand to carry some things back to the room. Then when we returned to the playroom that evening, a volunteer I had met earlier in the day was right there and helped us get there safely. At the end of our time playing, Cameron wanted to take the Chutes and Ladders game upstairs and again another person helped me.
Tonight we were ready to embark on another playroom outing and a woman showed up at my door saying..you know me but we've never met. It turns out she was an adoptive mama from our adoption board who knew about Cameron and unfortunately her son was also here and she walked down with us to the playroom. It's as if each time I took the step of faith outside this room, God was always there sending help.
Today a member of our church was on her way to St Louis and Rick asked her to stop and drop off a present of chai for me. She called as we were playing and I wasn't sure how to meet her. Well then a staff member mentioned Wii to Cameron and said she'd take care of him for a few minutes while I went outside. So thankful for the little things God is doing to send me help and encouragement..I am not alone.
Of course the BIGGEST thing we've seen God do this morning is negative cultures! We were all praising Him out loud and praying through this day that they would remain. God sent us a nurse today that will also coordinate all the steps needed tomorrow for the procedures for Cam's heart and the installation of the PICC line. It's now 37 hours and we are so close to being cleared that we can see the finish line..the hope is that Cam will leave the hospital on Friday!
We had a fun day playing, laughing, reading, watching a movie...I love this kid! Tomorrow Dad is coming for a visit (and I'm sure Cam will talk to him again about how he wants a real glow fish like the one in the fish tank here). Praying now.. the hospital staff is putting everything into place as if we are really doing these procedures tomorrow. I am not alone..thank you God for walking with me and sending people at the right time...for knowing what I needed and meeting that need even before I could ask.
Cam's drawing of a fish tank with a fish inside and his list from the Moose Menu here for breakfast today
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