Family 2014

Family 2014

Saturday, March 2, 2013

Lessons from the 10th Floor: Waiting

Friday has now turned into Saturday and the past days have been filled with fun moments of watching Cameron at times come back to life.  He has been fever free and able to begin learning to walk some.  This is priceless after what we have been through.  Each morning we fight through fear and discouragement to learn that all the efforts taken still lead to positive cultures in the morning for staph in his blood.

They think it is endocarditis (infection of the heart) but don't want to do a sedated heart test until they are able to put in his PICC line ..which he cannot do until his blood cultures are negative for 48 hours..so we wait and pray.  There has been a frantic rhythm to our days up until now and then it's the weekend and we are slowing..resting..praying...hoping for an end to this time in the hospital but fighting for joy that God is on the throne and HE will answer in His time.

In the meantime Corey has gone to live with another family in our church for a while until we can come home as it became too difficult to manage his care at home with our other kids.  He is happy and safe and even went to a local Christian school for a few hours yesterday and did well.  I know God maybe using all of these things even to prepare us for the heart surgery in the future...we trust Him..we love Him.

Here are some pictures from Cam's awake moments during the past 24 hours..thank you Lord for allowing us to see that sweet smile again!


Dealing with the painful blood draws each morning..we covered Cam's head w/ his moose towel and used headphones because he keeps on insisting that he needs to have his ears covered :)


Cam practicing standing and looking over the Moose menu at the hospital (only God could love Cam and so sweetly orchestrate the Moose theme here at the hospital..Cam loves moose!)


Cameron playing at physical therapy in his bed.  He loved the balloon the therapist made from a glove!


After a visit to the playroom, Cam finds a few toys to bring back to the room!


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